On the Edge




This is what happens when you spend too much time in the house.  The shelf of On Edge coins above has made our recovery hours interesting almost daily.  The wind or a shirt sleeve will make them flat and we are challenged to upright them again and again On their Edge.  Greg is recovering from his knee replacement and me from my 5th cycle of chemo.  

Greg is doing awesome and everyday remarks that he can not believe that he has a new knee.  A new walk and a new life to look forward to.  He's being a bit impatient wanting to do everything right now this minute but at the same time he is being cautious as the incision is still pretty nasty looking. Thus, the "after" picture will have to wait until some of the swelling goes away and it looks pretty.  He is at his physical therapy hour now driving and walking up and down the stairs all on his own.  Pretty amazing really.

I'm On the Edge of doing something different.  My last chemo was June 10.  Because of over a month without any chemo I am feeling like a ball of fire again.  I like it!  The PET scan I had done last Wednesday indicated that the tumors were still there same size but as my Doctor put it "not as glowy" as the scan done before chemo.  So, does that mean that it's on the edge of getting smaller?  

Getting that news was not what I wanted to hear.  I wanted to hear it was smaller and going away.  So then why am I hurting my entire body with chemo and the cancer is not going away?  I needed a break so I'm taking it.  But while I'm at it I have a few irons in the fire to help me make a good decision concerning what's next.

Next week I am traveling to Boston's Dana Farber Harvard Cancer Research Hospital under the guidance of some windsurfing friends who are way smarter than me.  I hoping that the scientists at Dana Farber might have something for me new that my already smart doctor here in Melbourne does not know about.  A miracle really!  At least I can say I tried.  Spending a few days in Boston could result in at least a good Lobster!

Speaking of Edges, I've mentioned a cutting Edge vaccine before.  Now I am closer to that reality than ever before.  The only hitch is that I have to get my immune system back to normal before I can take the therapy.  It's called IST (Immune Support Therapy).  It is the generation of human antibodies against a specific peptide of your cancer.  This form of immune support has been described as DCT (Dendritic Cell Therapy).  I'm still researching and asking advice along the way but it all sounds sooo much better than chemo. 

When this blog was started it was meant to be from my chemo chair and should have been finished with 6 cycles.  Since, I'm not seeing much of my chair and I'm putting off that last treatment to find another path I'm considering posting only when there is an update.  I will continue to write my blog but not post it on facebook.  This journey is going on longer than expected and for sure has me on edge and some of you bored.  

Thank you friends and family for your great support and love.  I remain positive and certain that this is yet another one of those life lessons and I'm On the Edge of something good.  





Comments

  1. There's no boring at all to walk aside on your Journey Dear <3
    Pretty AWEsome the improvment of Greg and his new perspective of life ! Can understand how impatient he can be, so we'll support him as well by waiting the "after picture" when he's ready :)
    Really great news as well that you found some (new) good supports for eventually switching methods... anything can work as long you keep this positive mindset ! You're fantastic on this !! :) <3
    Keep going, keep smiling, keep rocking ! Each coin can make the difference, as each effort and hope will do the same !
    WarmestHugs to your way. With Much Love to you both ((( <3 )))

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  2. Not bored...keep posting...keep fighting...keep hoping !!!

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  3. You are many things, but I've never known you to be boring. I think you should keep writing, you have a refreshing and Inspiring perspective on things, and I love to feel like I am with you. I will continue to pray for your miracle in whatever form it may come. Enjoy a lobsta roll for Me! ❤❤

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    Replies
    1. The coins are not just pennies and nickels but dimes and quarters too! Some foreign thrown in as well. Pick it up off the floor or out of the dryer and stand it up on the edge for a challenge when you are REALLY bored.

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  4. Your other paths sound very exciting. I love your blogs and share with the sisters. We are all very grateful that you share your journey with us. It lets understand better how you feel and what's going on without intruding. You've got more prayers going up in your name than you'll ever know. Much love, Bethie.

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  5. love the picture of the coins......nice to know you two lovebirds are both healing...we continue to pray for you. anything you need-ASK! love reading your blog, Beth...i share all of this with Doc so he keeps up to date! hugs and love...S & D

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