ME



Today it's all about ME.  The results from Greece were only slightly encouraging.  I did indeed kill some cancer but not enough so, alas, the second dose is encouraged.

I consulted with my bomb of a doctor, Dr. Bomalaski with some questions regarding fluid build up and slight groin pain.  It was a good meeting confirming that YES you still have cancer and at some point we will need to discuss palitive care.  What? Hospise?  Poor Greg's mind went directly to my death bed.  Hold on brothers and sisters I'm not done yet.  Palitive care simply means when I need pain medication it's available.  Trust me I don't need any pain meds.

The Moffit Cancer Center appointment didn't go so well either.  Seems that Dana Farber did not send the notes from my meeting nor did they send the results of the tumor gene test that would qualify me for their T-Cell therapy.  My local doctors office didn't include my scans in their package so not much was accomplished there.

It was my second meeting with Dr Chung at Moffit.  I went last year to consult when I was diagnosed for the second time.  She told me during my recent visit that she considered herself an expert in the field of immune therapy and that she didn't have much hope of its success in killing Ovarian cancer.

My next step is to go back to Dallas November 29 - 30 for my second dose of Immune Support Therapy regardless of what Dr Chung at Moffit thinks.  I THINK it WILL work.

I know that I will pass sooner than later so while I can, Me is enjoying ME self.  I've been home 6 wks from Bonaire where the best time was had by all.  The first weekend home from the Island I sailed in the Kona North American Championships in Clearwater.  Was a nice time with a nice group.  Got my girlfriend Tay Tay to come race with me.  She did awesome and didn't forget any of her Olympic tricks.  Love my girlfriend and proud of her too!

The next weekend I had my GRAND boys for the weekend.  We did some zip line, running on the beach, golf cart riding and generally had a blast.  I love my Grand Boys and proud of them too!  They are very brave and very strong.

And yet on another weekend we took a road trip to Nag's Head North Carolina in my little motorhome so my son, his wife and his middle child could run a half marathon.  We went a few days early and got in more zip lining.! We had so much fun!  It was really nice being with my son's family.


This weekend I am blessed with a visit from ABK Windsurfing Camp peeps with a great clinic right in my own back yard.  I planted flowers.  I made pottery christmas gifts.  There has not been much time for sadness or negative thoughts.  There is so much fun yet to be done and I don't want to miss out on any of it.  You can be sure that my focus is on ME enjoying every moment.  And on that note, I booked a one way ticket to Bonaire in just two weeks time.  Best medicine ever.

I probably will not post many more blogs.  I'm not hard to find.  It has been really helpful to ME putting my thoughts out there for others to read.  My cancer journey has been a trip and I thank you for letting ME drag you along.  I expect to continue enjoying my beautiful life as long as I can and I will look for a hug when I see you.  I have few regrets and I'm hoping that somehow my life has touched yours in a positive way.  God Bless you all and thanks for the prayers. WITH ALL MY LOVE......

                             Surfmama

       

                                                  

Comments

  1. You are awesome Beth! LIVin it right! Hangin tough! And still spreading the smiles. May all of us live our lives as well!

    ReplyDelete
  2. you are beautiful and amazing. i loved hugging you yesterday...yes, we each get this one beautiful life and you, my friend are living it to the fullest. God bless you...travel safe

    ReplyDelete
  3. You go girl! Laurel and Manny would be so proud of you, and I am too! ❤️❤️

    ReplyDelete

Post a Comment

Popular posts from this blog

On the Edge

The "FIVE"