Here we go

Here we go

This is the forecast model for September 10....HERE WE GO.  This just may raise my stress level this week but not much because it's already high.  Not really but it has been an eventful few weeks.

Plan B was to have the IST (Immune Support Therapy) infused Aug 24.  That got delayed due to an International mail issue.  I got the call the morning before my sister and I were to leave.  Here we don't go.  Big apple cart upset!  I became insecure about counting on the next week but went forward with reservations for just myself.  Oops!  Not a good decision according to my sister.  However, I felt confident that I did not need company this time.  Everything could again go wrong.  I needed to take charge and do this with only myself to worry about.  I also had to remind everyone that this is my treatment and I need to do it the way I feel most comfortable.  

The week waiting was excruciating.  I knew that my tumors were growing.  I could feel them on the outside of my skin.  I hated giving them an extra week to grow.  Before we were due to leave I wanted to see how much my C-125 (blood cancer marker) had gone up if at all.  When I stopped chemo June 10 it was 60.  Aug 21 it had increased to 84.  The normal is 0-35.  These are not big numbers but that did substantiate my feeling that they were growing.

Finally, the day came and off I went August 30 to Dallas for my 5 hour infusion of cancer killing cells prepared just for me from me. I am home now waiting for some kind of sign that it is working.  So far I feel nothing.  Maybe they are not so tender and maybe they could just be a bit smaller and maybe it's wishful thinking but so far I feel super fine.  They are not getting bigger.  Now I have to wait for 3 weeks to see if it worked.  It will take 2 weeks to get the results back after the 3 week wait which adds up to a total of 6 weeks to wait.  So....

 HERE WE GO!!!!

I thought since I feel so good we could just sneak down to Bonaire for some clearwater windsurfing and Greg could get back into action with his new Knee.  Speaking of which.......

He is still in recovery but most of the swelling has gone and the knee pain he had for 39 years is no longer!  It looks more normal than before. The down side is that it is taking forever for his other body parts to adjust to his new gate.  This is where we are hoping that Bonaire will be good for his overall skeleton and good for my mission of killing cancer.  Any excuse really!

BEFORE                                                                                                               AFTER

Plan C is still in the works for you doubting my currant therapy.  Dana Farber tested my tumor to see if I had the gene that would allow me to participate in the trial they are offering using T-cell therapy along with Avastin.  I do qualify.  Upon reading the consent form I would have to be in Boston for an infusion every two weeks indefinitely.  This would require a move to Boston which is NOT an option. They suggested that I contact Moffit in Tampa. 

I will contact them if I feel my tumors growing or if for any reason I feel that my currant plan B is not working.  I have a hard time entertaining that because I feel so positive that this plan is going to work.  So, 

HERE WE GO.

😀