From Where I Sit

Today it's all about ME.  The results from Greece were only slightly encouraging.  I did indeed kill some cancer but not enough so, alas, the second dose is encouraged. I consulted with my bomb of a doctor, Dr. Bomalaski with some questions regarding fluid build up and slight groin pain.  It was a good meeting confirming that YES you still have cancer and at some point we will need to discuss palitive care.  What? Hospise?  Poor Greg's mind went directly to my death bed.  Hold on brothers and sisters I'm not done yet.  Palitive care simply means when I need pain medication it's available.  Trust me I don't need any pain meds. The Moffit Cancer Center appointment didn't go so well either.  Seems that Dana Farber did not send the notes from my meeting nor did they send the results of the tumor gene test that would qualify me for their T-Cell therapy.  My local doctors office didn't include my scans in their package so not much was acc...

CURIOUS BARACUDA I ain't scared This big boy decided to come up from the deep blue to swim right along side me.  I think he wanted me to take his photo!  He charged me twice but I wasn't scared.  He was just a bit curious.  It might have been that shinny necklace that was dangling from my neck engraved with "Greg loves you".  Whatever, he was just a bit curious and kept his distance as we both swam along the reef. Island session part 8   (I'm not able to make it click on.  You will have to copy and paste it yourself if you want to watch.  Otherwise take my word for it!)   https://www.youtube.com/watch?v=5AbbxhsVjOM&sns=fb When we left Florida at the end of September to avoid the hurricane maddness and to forget about Cancer for a whle, I set a windsurfing goal for myself.  Take 2:02 minutes of your time to see my goal accomplished.  I have been working on this crazy trick called a push ...

Here we go This is the forecast model for September 10....HERE WE GO.  This just may raise my stress level this week but not much because it's already high.  Not really but it has been an eventful few weeks. Plan B was to have the IST (Immune Support Therapy) infused Aug 24.  That got delayed due to an International mail issue.  I got the call the morning before my sister and I were to leave.  Here we don't go.  Big apple cart upset!  I became insecure about counting on the next week but went forward with reservations for just myself.  Oops!  Not a good decision according to my sister.  However, I felt confident that I did not need company this time.  Everything could again go wrong.  I needed to take charge and do this with only myself to worry about.  I also had to remind everyone that this is my treatment and I need to do it the way I feel most comfortable.   The week waiting was excruciating.  I...

Windsurfing has afforded me many things in my life and I'm forever grateful.  It never ceases to amaze me how things happen.  How things come and go and what goes around comes around.  It is through Windsurfing that I am able to put plans A B & C together hoping to eradicate my cancer.  Plan A was traditional medicine which failed to adequately control my tumors after 5 rounds.  Plan A had nothing to do with Winsdurfing and only kept me from doing it.  I had to do something different. Glad I have a plan B.  Plan B is something called IST (Immune Support Therapy) sometimes referred to as DCT (Dendritic Cell Therapy).  It uses my own good cells to kill the bad cancer cells.  Not covered by Insurance nor FDA approved.  Plan B is active and August 24th is my D-day for my IST infusion.  I feel good about this plan.                               ...

This is what happens when you spend too much time in the house.  The shelf of On Edge coins above has made our recovery hours interesting almost daily.  The wind or a shirt sleeve will make them flat and we are challenged to upright them again and again On their Edge.  Greg is recovering from his knee replacement and me from my 5th cycle of chemo.   Greg is doing awesome and everyday remarks that he can not believe that he has a new knee.  A new walk and a new life to look forward to.  He's being a bit impatient wanting to do everything right now this minute but at the same time he is being cautious as the incision is still pretty nasty looking. Thus, the "after" picture will have to wait until some of the swelling goes away and it looks pretty.  He is at his physical therapy hour now driving and walking up and down the stairs all on his own.  Pretty amazing really. I'm On the Edge of doing something different.  My last chemo...